New Support Service for Stroke Survivors

New Support Service for Stroke Survivors Image

The Stroke Association has launched a new service to support stroke survivors and their families living across southern Derbyshire and Erewash.

We’re funding the pilot ‘Information, Advice and Support Service’ which will run for 12 months to provide support for people who have had a stroke.

Three Stroke Association coordinators, linking in with healthcare professionals, will work with stroke survivors and their families and carers, to help provide essential information, emotional support and practical advice in the aftermath of a stroke.

Stroke survivors using the service will have access to My Stroke Guide, a new online platform, via the Information, Advice and Support Service. This is designed to give stroke survivors and carers additional knowledge, skills and confidence.

My Stroke Guide includes a goal-setting feature, support forums and information on services, which aim to provide understanding, motivation and confidence to help stroke survivors manage their condition. My Stroke Guide was designed by stroke survivors for stroke survivors, and can be accessed on smartphone, tablet, laptop and PCs.

The new support pilot team will also hold regular stroke prevention activities across the year, raising awareness of common stroke risk factors, such as high blood pressure.

Helen O'Higgins, Senior Commissioning Manager, said: “We’re currently working closely with stroke survivors and our providers to make improvements to specialist community stroke care for patients across our area.

“This pilot is an important part of our work to help people who have had a stroke to recover and lead active, full lives, confident that they’re supported and are doing everything they can to get back to health.”

Julia MacLeod, Regional Director of the Stroke Association, said: “Our information, advice and support service pilot will help people affected by stroke start to rebuild their lives.

“We look forward to working with the CCG to provide a high quality service for stroke survivors and their carers.”

In 2014/15 there were 655 new stroke survivors within NHS Southern Derbyshire CCG’s area. There were 223 in Amber Valley and South Dales, 389 in Derby city and 43 in South Derbyshire and 116 new stroke survivors within Erewash CCG.

There are more than 9,500 people in Southern Derbyshire living with the effects of stroke. More than half of all stroke survivors are left dependent on others for everyday activities. The numbers of deaths from stroke in the region has decreased by 46 per cent between 2004 and 2013, which suggests that increasing numbers of people are living with the impact of stroke in Southern Derbyshire and Erewash.

Stroke survivors and their carers who feel they would benefit from the new services can call the information, advice and support service on 0115 8712460 or email For more information about the Stroke Association, please visit or call the helpline on 0303 303 3100.

Click on the links below to access further information and materials: